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Section: Life-Style Page: D1 Date: Saturday,
March 25, 2006
The right step
Woman dances through recovery from
traumatic brain injury
BY JENNIFER GISH Staff Writer
Caption: Philip Kamrass/Times Union PHOTOS BY
PHILIP KAMRASS
ERIKA KIRTOGLOU,
a survivor of a 1993 car accident that left her with a
traumatic brain injury, made the title of her self-published
memoir "I'm Going to Dance" literal when she began taking
ballroom dance lessons with instructor Michael
Muller three years ago. She'll dance with Muller
tonight at a benefit she organized for the Brain Injury
Association of New York State.
ERIKA KIRTOGLOU
celebrates after correctly dancing a waltz with dance
instructor Mike Muller during her weekly lesson
| Erika Kirtoglou
glances in the studio mirror as her dance instructor
sweeps her around the floor during a slow waltz.
Michael Muller's
flattened palm supports her back with delicate strength.
He knows, since they've been dancing together for three
years now, that he needs to pull her in for those few
times when the room starts spinning and she wobbles a
little in his arms.
Kirtoglou says Muller's the only person she can dance
with, because he knows how to compensate for the things
she can't control, like when she steps back on her right
leg and instead of gracefully staying on her toe, her
leg locks like a wooden soldier's.
She never thought of
dancing as anything other than a metaphor for her life
and a theme in her book until Muller called her the day
after a story about her incredible recovery from a
traumatic brain injury appeared in the Times Union in
2003. He saw the book she was writing was called "I'm
Going to Dance: A Memoir About Traumatic Brain Injury,"
and the professional dance instructor asked her if she
was serious and offered free lessons.
Tonight, they'll dance
that slow waltz at a benefit for the Brain Injury
Association of New York State. It's the gala Kirtoglou
organized herself, another one of the dreams that seemed
impossible to everyone but the dreamer.
"I know my disability. I
know my condition, and I know what my prognosis should
be, yet I know it but I don't believe it and I don't
feel it," she says. "I know my goals are unrealistic,
and yet they're not. I can feel them beckoning me."
Last summer, Kirtoglou
looked at Connie Slocum and told her a room that held
175 wasn't going to be big enough.
Kirtoglou already had
admitted to The Desmond Hotel and Conference Center's
director of catering that she didn't have any experience
organizing charity galas.
But she had an idea for
a Brain Injury Association of New York State fundraiser
that would include dinner and dancing, and the belief
that she could make it happen.
She expected a crowd.
She wanted the biggest ballroom Slocum had.
"I was honest with her,"
Slocum says. "I've been doing this forever and a day,
and with her excitement I didn't want to see that bubble
get burst, and she said, `I know I'm going to need
more.'
Tonight, Kirtoglou and
Muller will waltz for a crowd of more than 300.
"Reach. Reach. Tang-o
close," Muller says, guiding her around the room in a
tango.
He tells her she needs
to be like a cat, slinking around the floor.
"Soften your knee.
Reach. Reach. Tang-o close. Soften your knee."
Each step gets softer.
Kirtoglou's working against her body, but she smiles and
looks up with warm brown eyes.
She tries to practice
for 30 minutes a day at home. The short section of wall
in her hallway becomes her dance partner. The kitchen
counter catches her on her spins.
"It's very annoying
because in your mind you know what to do, and you know
you want to stay upright, but you just can't help it,"
Kirtoglou says. "That's really difficult to get past,
knowing what to do and not being able to do it."
If she can't master a
step during lessons, she'll practice it at home until
she gets it right.
She's everything Muller
read about her in the newspaper three years ago on the
10th anniversary of her car accident.
It was the story of a
17-year-old girl who was only a few miles from her house
in Speigletown when she swerved over the center line to
avoid some parked cars and crashed into an oncoming car.
Her seat belt broke. She was thrown out the side window
and head-first into a telephone pole.
Her family prayed over
her as she lay in a coma at Albany Medical Center
Hospital's intensive care unit. Even when she began
responding to visitors with small hand and foot
movements, doctors doubted she would ever excel beyond a
vegetative state.
Yet she learned to walk
again. She learned to talk again.
She battled through
depression, and fought the urge to jump off a bridge one
night.
The woman who doctors
could only see limits for earned a bachelor's degree at
Franciscan University of Steubenville, Ohio, then a
master's degree in English from The College of Saint
Rose, and then turned her thesis project into a
self-published memoir of her recovery.
She got her first
shipment of books from her publisher, Wicwas Press LLC
in New Haven, Conn., just weeks ago.
"We've got to work on
our song for Oprah," Kirtoglou tells Muller as she takes
a break from practice.
She said the same thing
to him on their third lesson, and she's not really any
closer to getting on the "Oprah" show now than she was
then, other than having sent the talk show host a copy
of her book.
But she will dance for
Oprah one day. She knows it.
It's the only way to get
the message out, to talk to kids about wearing helmets
when they ride their bicycles or skateboards. She
recites the statistic that 5.3 million Americans have
traumatic brain injuries.
She looks down at a copy
of her book, lying on the coffee table in the dance
studio's lounge.
"That's my life," she
says pointing to the 266-page book. "And I have to pick
it up every day."
She started her own
motivational speaking company called Surviving Dancer,
making advocacy her full-time job, and is looking for an
agent to represent her on future books and engagements.
Kevin Craig West, an
actor who's appeared on television's "Law and Order" and
will perform in an upcoming production of
"Metamorphoses" with the Capital Repertory Theatre,
befriended Kirtoglou along the way, and wants to make a
feature film about her life.
She's only 30. There's
so much time left.
These things,
Kirtoglou's sure, will happen.
And the people she's met
have become believers.
"Whatever that girl says
she's going to do next, if she decides to play the
lottery, we should play the same numbers, because she's
going to win," says The Desmond Hotel's Slocum. "There's
someone who took a dream and ran with it. Not everybody
knows how to dream like that. Each time I've met with
her, you take a deep breath and you see the sun."
Muller presses the play
button on the CD player and runs to the center of the
dance floor where Kirtoglou stands gazing into the
distance again.
It's the slow waltz, the
one they'll do at the fundraiser tonight.
It's not the song she
originally hoped for: country singer Lee Ann Womack's "I
Hope You Dance." Muller thought it wasn't the right
tempo for them. When he suggested another song, he
teased her, saying she probably doesn't even know who
sings it.
But she said she knew it
was by the Eagles.
She's familiar with the
song.
"Take It To the Limit."
Jennifer Gish can be
reached at 454-5089 or by e-mail at
jgish@timesunion.com.
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| <%=hi%> |
Factbox:
<%=hi%>Helping others It's too late to get tickets to
the "Surviving Dancers' Fundraising Flurry: Making
Dreams Come True" benefit for the Brain Injury
Association of New York State. But you can call 459-7911
or go to http://www.bianys.org to donate to the
association or to learn more about its work. For more
on Erika Kirtoglou's book "I'm Going to Dance: A Memoir
About Traumatic Brain Injury" visit her Web site at
http://www.survivingdancer.org. | | |
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